Or does my bum look big with this on! Best wishes to you all out there, just remember without your precious bag, would you be here? I now have my little friend, my stoma. I named it of course. I had a permanent ileostomy 4 weeks ago and had various issues with food and booze since. Red wine goes straight through me at a pace but I am ok with white wine and Rose.
My go-to drink is Guinness, it firms up my output and is full of iron, I have a can every evening. I eat lots of crisps and so far, as long as I have a good portion of carbs I can eat most things. I'm trying chick peas and chorizo stew tonight! Hi all, Had an interesting read from everyones comments.
I have only had my colostomy bag for almost 2 weeks. I'm finding it very hard to deal with and find myself very emotional. Mine is only temporary and will get reversed at some point. I'm having trouble with the bags sticking and at night it balloons with air and then it leaks.
I dont have a big appetite and haven't for almost a mth now. I stay away from all the things I have been told that will cause blockages and gas but still overnight it balloons. Any tips? I have had a ileostomy for about 2 years now n still find it difficult as to what I am suppose to eat. I eat a lot of pasta, rice, some veggies that I miss a lot.. Still not sure about the cook or raw to eat. So I do both with limited portions n do enjoy a Salad once a week maybe.
Lots of potatoes, applesauce, pretzels n peanut butter.. Steak every once in a while. But have to take meds to watch my cholesterol. Seems what you have to eat to bulk the stool is bad with that. Per doctor due to gluten free, vegan free n low in sugar. I mix with lite pink cranberry juice, splash of coconut water, Any pomegranate berry Hy-dro amor electrolytes. Quite tasty n somewhat tasty n stomach seems to not mine it at all.
One thing Vodka can be mixed with almost anything.. Now if I could get my fruit n veggies right I would be a happy camper. Tuna, salmon n chicken No problem.. I guess will have to spent money n go see a nutritionist.. They tell you all what not to eat at the beginning but need help after long period after.. Any suggestions besides peeling no skins, nuts, seeds!?!.. Verity, I too have a colostomy bag for the past six months and my reversal is due a fortnight after my last chemo, which will be in mid-December.
I went through occasions when I've had midnight and early morning leaks, and once I even got a sudden leak in the middle of a meeting.
I felt so embarrassed and somehow wriggled my way out. I feel sometimes depressed, perhaps due to my chemo. Off late, I have found that the way I stick the microphore tape around the colostomy bag at an angle and not as a square prevents these leaks. After, I changed the method of sticking the tapes, my bags don't leak and they last longer!
Ballooning of my bag can be mostly prevented by avoiding soft drinks and potatoes. I had a permanet iliostomy 8weeks ago. For the past two days my poo has been thick, and difficult to get to the bottom of the bag to empty. What can I do to slightly loosen the poo? Hi Vivien, if you cannot get in touch with your Stoma Care Nurse to discuss this issue please contact us on and we may be able to point you in the right direction. I had ileostomy October and after a month in hospital as I was very ill I got home, I thought all was going well and after routine bloods at GP was called back to hospital as I was so low in magnesium, potassium etc through high output.
Drips up and after 2 weeks I recovered enough to go home once again. I now take 8 dioralyte in 1 litre of water to sip on every day to replace electrolytes and no more than a litre of any other fluids tea juice water per day. Seems less is more fluids for me anyway. Plus bananas, carbs etc less output and thicker, seems to be working better and no leaks. Meals are little and often throughout the day. Tried alcohol and boom it threw everything haywire, electrolytes so low with watery output, couple days after I ended back in hospital as my body spasmed and went rigid, very ill.
But after trial and error with food, getting there. Potatoes, bread, pasta will thicken up the output, whether I take them or not, Milk, will go straight through like water within an hour, the only other thing that makes it watery is Red wine.
Apart from that,fine, have been told it could be reversed, but as things stand, Happy to continue as it is. Hello all, I've had an ileostomy for eleven years now.
The major problem I have had repeatedly is bag ballooning with leaks. I thought this may have been due to unsuitable foods. Cutting out green leaved vegetables, beans and wholemeal bread has certainly alleviated the problem, but a couple of years ago it was very troublesome. My GP referred this to a consultant gastroenterologist who suggested this was due to excessive bacteria in the gut and recommended short doses of antibiotics currently Doxtcycline which has proved to be good in the medium term.
I thought this might be useful for those having the same problem. As regards uneven attachment areas, I have found that Adapt barrier ring s are a useful addition to the adhesive flange. I had my ileostomy in march 20 I have had problem since I am very confused what I can eat I was in icu for 4months had to learn to walk again I had to stay in hospital for 5months can anyone tell me some recipes as I have gone off my food also have problems with liver and blood and salt outputs with blood test I also suffering from ballooning can anybody help me Thankyou.
My problem at the moment is making sure I have enough salt every day when I rarely used it before and drinking fruit juice and the odd glass of wine, both of which go straight through me. I like a bit of both. I have just looked up 'ileostomy and wine' on Google and there are various NHS sites and others to read up, all with food and drink advice. I'm going to try a glass of water with a glass of wine; it's suggested I can also drink wine after the food and eat things like bread, rice pasta or mashed potatoes to soak it up.
Also adding fruit juice to water to give the stomach something to work on apparently. No idea if any of this will work but I'm going to give the ideas a try. Thank you for your site Michelle, I was getting to the point where I thought a kind of 'support group' might be useful and that I could share what has worked for me.
Getting a stoma was a terrible shock as it wasn't expected. I knew it was a faint possibility but the cancer had spread and in the end there was no choice, but I guess it's a small price to pay to go on living. Hello from Australia. I currently have a J-Pouch and had it for 17 years.
But I have had on going problems and I am thinking of going back you a stoma. What are your thoughts. Hi everyone, Just had a colostomy bag attached - 4weeks.
Still getting used to so much and discovering this site has answered so many questions. To all the contributers here thanks. After you leave the hospital, your doctor and an outpatient clinical dietitian nutritionist will help you as you go back to following your usual diet.
Eating bland foods will help you avoid uncomfortable symptoms, such as:. The following tables include examples of bland, low-fiber foods. If you have questions about foods not listed in these tables, call to talk with an outpatient clinical dietitian nutritionist. You can reach a staff member Monday through Friday, from am to pm. Eggs may cause a bad odor smell when you open your pouch. These foods may cause a bad odor when you open your pouch.
High-fiber foods, such as whole grains whole wheat bread, brown rice, bran cereal, quinoa, and buckwheat. Some vegetables may cause gas or a bad odor for some people.
Eating too much banana may cause an ileostomy blockage. You can find the amount of fiber in your food by looking at the Nutrition Facts label see Figure 1.
Nutrition Facts labels can help you compare the nutritional information between different foods. Figure 1. Fiber information on a Nutrition Facts label.
A food intolerance is when eating a certain type of food causes uncomfortable symptoms, such as diarrhea, bloating, gas, or bad odor. Sometimes, food intolerances go away as your colon heals. When you add foods back into your diet, introduce them one at a time. Then try it again. No two people will react the same way to food. Your first follow-up appointment will be about 2 weeks after your surgery.
At this appointment, your doctor will tell you if you can start adding high-fiber foods back into your diet. Doing this will help make your bowel movements bulkier more solid. When you start adding high-fiber foods back into your diet, do it slowly. Only add one food at a time. Aim to drink 8 to 10 8-ounce glasses about 2 liters of liquids every day.
When you have an ileostomy, you lose much more salt, potassium, and water than usual. This can lead to dehydration. Throughout each day, keep track of your liquid intake how much liquid you drink. Be prepared and take one with you. Don't wait until you're thirsty.
Stay one step ahead and keep your body hydrated and healthy. There are no hard and fast rules about how much you should drink. Everyone will have different needs from one day to the next. A normal healthy person is recommended to drink around glasses of fluid per day 1 , but some people will need more and others less.
Use your urine color as the best guide. Contrary to popular belief, plain water is not a good hydrator. In order for fluid to be well absorbed by the body, a drink needs to have a small amount of glucose and some sodium. This is a concept known as osmolarity. Sports drinks are often recommended when you have an ileostomy, but they are high in sugar and can be unhealthy. Instead, choose to drink dilute squash or fruit juice with a pinch of salt or have an electrolyte drink which can be purchased over the counter at pharmacies or supermarkets.
Many people — both with and without an ileostomy — are chronically dehydrated every day. Symptoms such as headaches and tiredness can be attributed to other health conditions, but they are often due to dehydration.
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